If you agree, Oxus Technologies Limited, acting on behalf of ILiAD Biotechnologies (the “Sponsor”), may collect, review and store your/your child’s personal information, to assess your/your child’s eligibility for the IB-201P study. We may disclose your/your child’s details for this purpose to a medical center(s) involved in the study.
We will be collecting some personal data that identifies you/your child, including your/your child’s name and contact details, as well as information relevant to the clinical study including medical information.
All information that we ask for in this questionnaire is necessary for the purpose of considering your application. The legal basis of the data processing is your consent. Failure to provide any requested data or consent to data processing may prevent us to assess your/your child’s eligibility for the current clinical trial.
You have the right to request access to and correction of your/your child’s personal information. In certain circumstances, you have these additional rights in relation to your/your child’s personal information: object to the processing of your information, request deletion of your data, restrict aspects of the processing of your data or request transmission of your data in a common digital format to yourself or another controller. You also have the right to complain about how your information is handled to a supervisory authority that is responsible for regulating compliance with the law. In the UK, this is the Office of the Information Commissioner.
All personal information that you provide will be kept confidential and will not be disclosed to any third party other than the appropriate medical centers involved in the study, unless otherwise required by law. Your/your child’s identity will not be provided to the Sponsor.
Your/your child’s information will be stored on servers in the United Kingdom. All parties involved in the study are required to maintain your confidentiality.
Unless you indicate otherwise, the consent you provide shall be considered valid indefinitely. Your/your child’s information will be stored for a period of [XX Years]. You have the right to withdraw your consent to the processing of your information at any time. Your withdrawal of consent does not affect the lawfulness of the processing before the withdrawal.
If you have any questions or concerns about how your information is handled, wish to exercise your rights or wish to withdraw your consent to the processing of your data, please contact Oxus Technologies Limited who will consult with the Sponsor to meet your request.